Tuesday, July 7, 2009
And he asked: Why are you single?
Now back to my story, as I spoke to "Andy" (the obnoxious one), he asked me "Why don't you have a boyfriend? Why are you single?" I laughed, and smiled at him and responded "I am too busy for that." He looked at me and responded, "So what! You can stiill have a sex life." I just stared at him, I think my mouth dropped at that moment. I laughed and responded; "A sex life? What's that? No thanks." He continued to ask me about it and why I didn't want a hook up buddy. I couldn't stop laughing. And then he asked me "How are you so busy?" I then told him about all the projects I was working on - The first book; the sequel; making, selling and promoting my jewelry; working on my cancer non-profit; and my cancer for profit. He looked dumbfounded really, and continued to tell me that I needed a sex life. Lol. As I stood there and told my friend about Andy's craziness, she giggled when he pointed to a drunk mam at the end of the bar and told me that he liked me, he wanted to go out with me. It was funny really, there Andy was teasing me away, getting a kick out of my responses. I just continued to laugh at what he was saying. And i think the last thing I said to him was this - "I don't need a man to be happy. I don't mind being single, and I have more important things to do right now."
The truth is that when I was younger, before cancer I didn't care who I dated, I just dated people. I was always in a rush to be with someone, as if I had to have a man to survive. But after cancer, I feel differently about things. When I am looking eventually, I want a man who is driven, passionate and intelligent. There are more qualities that I look for, definitely. So, now I ask you, why are you single? If you are of course single, you still can be fabulous!
Wednesday, July 1, 2009
Remembering The Good Ol' Days - Way Before Cancer!
So, today, I started to remember things, some great memories I had and treasured from my time way before cancer. Remembering the wonderful times in our lives, are great in aiding us through the toughest times. I mention often that life is too short and that we need to embrace and enjoy the simple things in life, the things that make us truly happy. I'm going to tell you about some of my favorite, most precious memories that I have of growing up, and I will start at the beginning......
* As a young child, I was very creative and artistic, and could entertain myself for hours. Although I don't recall this, my mom reminisces about it often. When I was little - maybe 2 years old or so, I would wake up in the morning and play with my toys for an hour or more, instead of waking up my mom. During bath time, I would play with my bath toys - and have them talking to one another. Cute! I remember living in
* I remember living in
* For years, I used to go in the car and my parents would say: "Take a nap." I would reply with "I'm not tired! I'm not tired!" and seconds later, I would pass out fast asleep. But one time was different, I saw the traffic and decided to take a nap, but before I did I said to my family - "It's going to be a long trip for you and a very short trip for me."
* My mom used to love taking me to my Uncle Kenny's in New Jersey by bus, and I guess one day I was so mad at her, only five years old, I packed my bag and announced "I'm leaving for Uncle Kenny's!" at the front door.
* I remember the road trips that my family and I took, while my step dad was doing his comedy gigs. One of my most memorable trips was..... when we went to this amazing hotel, that had an indoor pool and playground that I could see from my room (which I was lucky enough to have my own room at the time). There was a mall attached to the hotel, and as you entered the hotel, there was a huge waterfall in the center of the lobby, that went into a pool. It was one of the most exotic hotels that I ever recall going to. I think it was a Holiday Inn in
* I remember my tap dancing lessons, that my grandma used to take me to, and our trips to Carvel ice cream afterwards. I loved the times I visited my grandma in Long Island and explored her house, and played in the backyard - climbing on the trees, running around and hanging with her really nice neighbor Mac and his wife. These were some of the best memories as I was growing up, and was under 10 years old. :)
* I remember when I first moved out to
* The apartment that I lived in when I first moved to
* I’ve had a lot of jobs in different fields, but I can honestly say that the one that brought me the most happiness was when I worked my first real office job at a local limousine company. I remember waking up every morning looking forward to seeing my fellow staff, my drivers and those gorgeous long stretches. It really was a highlight working there, and brought me so much joy and education. That wasn’t the only job that I loved. The next job that followed that one, was working at Curves – the women’s gym. I met and inspired many women, and still run into them now – over 5 years later. I ended up managing 3 Curves over the years and loved every minute of it.
Monday, June 29, 2009
Connected to Everything
I was crying for certain parts of the film, like when the young girl meets a friend, a guy who reminded me so much of my friend Patrick that lost his battle against cancer in September of 2007. The young girl battling cancer, reminded me so much of myself and what I went through. The bone marrow biopsies in the film made me cringe, the moment she mentioned that she had APL (Acute Promylocitic Leukemia), which is a subtype of AML (Acute Myeloid Leukemia). There I was in the theater, feeling ultimately connected to this young girl, who was fighting for her life, the same way I did when I was diagnosed with final stage Leukemia. (Just a note: There are 7 sub-types of Acute Myeloid Leukemia. I sufferred from Acute Promylocitic Leukemia. M3 has the highest peri-induction mortality rate. More people die during the first few doses of chemo than in any of the other sub-types! And did you know that 1/3 of people diagnosed with Leukemia, don't have symptoms! Wow, just like me!) As I continued to watch the movie and the young girls' trials and tribulations and decreased immune system, I saw how sick she was, and knew that when I was at the hardest part of my battle, I looked like her. I remember being in the hospital and hearing people tell me how sick I looked, how pale and yellow my face was, and how as my health improved, I was regaining color back in my face.
There was so much signifigance in this movie, to what I experienced in my battle against cancer, and it touched me in so many ways - mentally, emotionally and physically. As I continue surviving and thriving in my life after cancer, I have lots of time to look at the past 2 and a half years. Re-evaluating the way my life once was and the what my life has become all because of this intervantion from God. I feel connected more than ever to God, and to my great friends & family, and to my newfound love of life.
Friday, June 26, 2009
Letters of Recomendation
To whom it may concern:
Rachel also comes out to TNT practices at
Rachel is a tremendous advocate and inspiring speaker for the cause and is willing to do anything within her means to help improve the lives of patients and their families and find a cure. I can always count on Rachel to step up and volunteer for anything that is needed. She loves to speak about her journey and spread the word about the need for others to join the mission to find a cure for blood cancer. Please feel free to contact me if you have any questions.
Sincerely,
Elise McConeghy
Campaign Manager
Greater
The Leukemia & Lymphoma Society
(T )805-485-1781
******************************************
Ventura Community College:
Dear Rachel,
Thank you so much for coming and speaking to my health classes at Ventura College. Not only was your story inspiring and enlightening, but your positive outlook on life is a lesson in itself. It was especially informative to bring the books filled with information and pictures detailing your experience. Those who have never experienced cancer themselves, or through a loved one, saw vivid pictures and your real life story. You are wonderful, bright, and positive despite the hard times you went through during your cancer battle. I hope that that you can continue speaking about your cancer experience and spreading awareness throughout the community.
Thank you again for speaking, and I look forward to hearing you again!
Mary McDonough-Giles
Professor of Health and Physical Education
Ventura College
**************************************
Children's Cause Cancer Advocacy:
Thank you for your participation as a speaker in this year's Rise To Action (RTA) conference for young adult cancer survivors held in
Your role on the survivor panel was an invaluable contribution to the overall success of the conference. The courage you demonstrated by sharing your survivorship story, as well as your kindhearted interactions with younger survivors in attendance, helped to make the day a memorable and meaningful experience for everyone.
RTA-LA was attended by over one hundred young adult cancer survivors in their teens, twenties, and thirties and their family members. RTA aims to help survivors learn how to manage their follow-up care and deal with issues unique to them, relying heavily upon role model survivors like you to lead by example. RTA-LA featured panels and breakout sessions on topics ranging from late effects and fertility concerns to health insurance and employment issues.
Your active participation and leadership in programs such as Rise To Action are important because you inspire and empower other survivors to take action to protect the health of their bodies and minds. Research indicates that as many as two-thirds of childhood cancer survivors are likely to experience at least one late effect - or health complication - from having had cancer or treatment. As a speaker at RTA-LA, you have helped to equip survivors with the necessary tools to deal with some of those issues and know where to find help.
On behalf of the Children's Cause, we thank you and we highly recommend your leadership skills to other conferences and organizations that may have the good fortune of benefiting from them.
Best Wishes,
Jess Reamy
Program Associate
Children’s Cause for Cancer Advocacy
*********************
Ombudsman of Los Angeles - Pink Day
Ms. Rachel Shur
Leukemia Survivor Advocate
Dear Ms. Shur:
Your participation as a panelist in our first Survivors’ Panel Forum ensured the success of our 2008 “PINK” Day Breast Health and Cancer Awareness Wellness Program Activity. Thank you for your time, enthusiasm, and your commitment to motivating others challenged with surviving cancer. Your insights as a leukemia survivor was well received and commented on by those who attended the Q&A session.
Over 100 County employees and others attended this one-day event. The materials you donated provided up-to-date information on leukemia and the valuable outreach programs and resources available. Our goal for this year was to include information about different types of cancer to broaden and challenge participants learning experience; your presentation about twice surviving leukemia helped us achieve that goal.
Ms. Shur, we are sincerely grateful for your accepting our invitation to speak on such a short notice. We look forward to having you join us at next year’s Breast Health and Cancer Awareness Wellness Program Activity. The program is always held on the last Thursday of October.
Sincerely,
1-800-801-0030 (Complaints) E-Mail: ombudla@ombuds.lacounty.gov
Pay It Forward
Every month or so, my mom & I go out to splurge on our favorite thing to do together – we get a pedicure! As we sat waiting for our freshly painted toes to dry, I did my usual thing – made some jewelry, and my mom next to me was playing a brain game on her cell phone. The lady sitting in front of us seemed sad, I could see it in her eyes, and all I wanted to do was hug her and let her know that whatever she was going through was just a stepping stone. She ended up talking to me – noticing my jewelry that I was working on. She asked me how long I had working with jewelry and I told her – about fifteen years. As I talked to the nice woman, I told her a little more about me, about having cancer and experiencing life. She in turn looked at me and told me her sad story, a tragedy had hit her when her sister was killed recently, and she was still grieving. I was so saddened to hear her story, about her immense loss and about her new found kids (her sister’s children) that she was caring for. In an instant her life had changed drastically, she went from being retired to working again to support her new family. I understood a part of what she was experiencing – the loss of a family member. We continued talking and she told me about her other sister who was battling brain cancer. Her sister was having a hard time going through the radiation and I understood, because I too had been there with the heavy radiation treatments. I offered my ear, and my shoulder to the woman, I gave her hope and inspiration. The tools and gifts that I know God has supplied me with to help those in need. As we talked, I made a little key-chain – a wire woman with boobs and stilettos and a hope ribbon – one of my signature creations and handed it to my new friend. I told her that anytime she needed someone to talk to, she could call me, she could talk to me about anything – cancer, etc and I would be there to help in any way that I could.
I spoke to a friend of my aunts recently, a man who was diagnosed with Non-Hodgkin’s b-cell lymphoma, and was going through the same things I was experiencing when I was first diagnosed with cancer. He really needed to talk to someone who had been there, gone through the treatments, I understood the side effects – chemo brain mainly and the life changes. I provided him with the tools he needed, the links to numerous support groups online, support groups in his city, all online forums and networking sites, where he could meet others who were going through or had gone through the same thing as he was. Even though I had gone through a different type of cancer, and some very different treatments, I helped him and provided him with the tools and information that he needed to get through it. I know that he appreciated it, and ended up passing on the information I had given him to his nephew in
This is my way of paying it forward, by helping people any way I can and not expecting anything in return. Just helping someone is its own reward. I know that I not only brought some hope to that woman, but I brought her inspiration and the realization that she’s not alone. Even a stranger can bring a new thought or provide you with the inspiration that you may need to get by. My mom was really impatient as we waited in the salon, and just wanted to be able to go, but she was stuck because I had driven us there. After we left the salon, I turned to mom and said. We were there longer than expected, but there was a reason. We were meant to meet that woman, to share stories and to give her the inspiration that she needed, the hope she wanted and the strength and ability to overcome her obstacles. I looked at mom and said “It’s a God thing. God wanted us to cross paths.” It was a God thing, if we had left minutes earlier, we never would have met that woman, and we never would have been able to help her. The important things to keep in mind are: 1) Our lives can change, even drastically in a moment and we need to realize that we have a choice – to embrace the change and help & inspire others, or just move on with life as we knew it. And 2) If you are given a second chance at life, after a diagnosis, whether it be cancer, becoming a quadriplegic or anything else that alters your life, you MUST pay it forward. Help someone in anyway you can. Improve your life as you once knew it and help others, cook dinner for a homeless person, provide someone in need with information they need, give a neighboring kid a summertime job to help him/her pay for college, etc. Whatever you decide to do to pay it forward, don’t think about what you can get out of it. Happiness and gratefulness is enough.
I pay it forward in many ways, more ways than spreading hope and inspiration to those I meet. I try to bring a smile to at least one person’s face a day, somehow, someway. Even the little things we do can impact peoples' lives - like the homeless man I see near my house, I always bring Tom a little something to eat when I can, because I know he appreciates that so much. :) I dance in my car and sing out loud with my friends staring at me and laughing in my car, I make various presents for the wonderful people at the City of Hope, I speak for events and at local schools to get the word out there- That there is always hope, there is always a way to overcome obstacles and the people we loose in our lives leave a footprint on our hearts and in our minds. We always have their memories, and most of them leave an impact – no matter how big or small in our lives. This is what makes these people truly memorable, and this is what makes life worth living!
Life is too short - Live it up!
I send love to the families of these fallen well known favorites. I want everyone to take a momnet to ask themselves: " Am I living my life to the fullest? Am I doing the things I love to do? Am I inspiring people anyway I can?" I was given a second chance at life, perhaps a 3rd chance if you consider my stem cell transplant as a rebirth - like many do. I am living my life to the fullest, working on the things I love most, surrounding myself with the people who bring me positivity, serenity and laughter, and inspiring others along the way. I know this is a lot to think about, our present, the future and how our lives can change in a moment, and we can't control it, we can only find a way to work with it, and help others along the way and just live. My favorite saying is "Fight 2 Live". Because after cancer rocked my world, it changed my life and impacted my life in such a way that I finally saw, what was really important, what I really needed to survive and strive. I surrounded myself with people who brought joy in my life and got rid of the negative energy that was devouring me.
Like Nike says "Just Do It". No excuses, nothing is holding you back but yourself. LIVE!!!
Friday, June 19, 2009
The Importance of Support Groups 4 Cancer
So, last night I went to my monthly group and listened as a newcomer spoke to us about the problem he was having. The problem was something that many of us in the room could understand and fully comprehend. He was a young 50 year old, working a job he loved, and had been involved with for well over 20 years, and he was feeling fatigue on a big level. As I listened to what he said, a lot of things that hes was feeling really hit home for me. I listened to the other adults in the room, share their insight and advice on what this man should be doing, or what could help him with this difficult transition. When I was able to talk, I said to him "Everyone in this room, knows my story and what I have been through. I have been where you are in your life too. When I was diagnosed, I returned to work quickly because I LOVED my job, even against my doctor's orders, I worked from home until I was able to work at the office again. After every treatment and even after my stem cell transplant, I quickly rushed back to work. But when my company went out of business in December of 2008, I was crushed and tried to replace the job i loved with other jobs. They didn't even come close. Eventually, I got to a point of my life where I noticed changes - brain changes. I was checked out by my doctor and told that I have scaring on my brain as a result of my chemotherapy & radiation treatments, and when I was stressed out, I would experience memory lapses, small blackouts and forgetfulness. As much as I wanted to resume to my life - the normalcy, I had to come to terms with myself that it wouldn't. So when my doctor suggested that I take a leave from working, I did. I can't tell you how much it's helped me. I haven't worked in about 4 months now, but it's made me see that I need to focus on the things that are important to me, the things I enjoy doing - like making jewelry! Now I am at a very different place in my life, than anyone else in this group. You all have lived full lives, gotten married, worked a lifetime, had children, and grand children. I am only 29 years old, unable to have kids, experiencing fatigue spells that make me sleep all day some days, not even close to be married, and trying to get my life to something that I can call somewhat normal. Perhaps, you need to take a break from work, like I did. Take time off, maybe try something part time, enjoy life and do things that make you happy, like I do. I get out there and spread the word about my experience with cancer and spread hope and inspiration. I know that we all want to resume our lives where we left off, before we had cancer - we all want to be normal, but after cancer, our lives have changed and we will never have that normalcy again. We need to learn how to cope with the change and find the things we enjoy most in life and do them! We all experience fatigue and I wish that my friends would understand that I don't have the energy that I used to and I may never again. That's why I speak, to spread the word."
The truth is, that after a cancer diagnosis and treatments, we realize what is really important in our lives, and we utilize this experience to make us better people. We all suffer from the side effects - the assorted size effects - many suffer from chronic fatigue, some suffer weight gain or weight loss, brain scaring, memory loss and more. The importance of support groups for cancer survivors and simple - it brings us a place to share a common understanding, a common experience, and to realize that we are not alone. We can't expect our friends to fully understand what we are going through and what we are experiencing, but we can share it with them, and hope that they understand in some way where we are coming from. Fellow survivors amazing people to have in our lives. As I say on my myspace profile, Thank You Cancer. As dysfunctional as that may sound, I am thankful for the experience, the life change and the wonderful people I have met along the way, in addition to helping me realize who my true friends are. The truth is I wouldn't have it any other way! This is my life, I have one life to live and gosh darn it, I am going to make it a good one!! *CELEBRATE LIFE!!*